When I was a kid there was no awareness of other kids with disabilities. Wheel chairs were for old people. There were no classrooms for kids with special needs. Now …
They get it!
One of the less fun things that we get to do here in Rettland is have an annual IEP. Once a year, right before Claire’s birthday I get to sit …
Today’s Reality: Physical Therapy
Physical therapy is a very big part of our living in Rettland. Claire does pt with a horse once a week and twice a week she works with the lovely …
The Time is Now
There is a bit of a conundrum in Rettland. We have all worked hard to raise money for research. Now that there are trials, they aren’t full because participation in …
Appointments (and dissapointments)
It’s been a big few days and again I find myself with few words. I met my friend Catriona in real life in Boston, at a conference for Rett Syndrome. …
Same but Not
One of the things that continues to take my breath away in how varied the landscape is in Rettland. By that I mean that the children that are affected by …
The Love of Another
The last few days have been incredibly challenging. Claire had two days of seizures and on the third day a cold that kept her from breathing through her nose, something …