It’s hard to know where to start this story. Thanksgiving was fantastic. We were taken in to a friends family and it was wonderful, the best Thanksgiving in Claire’s life, …
Better Than French Fries
I will never forget when I met Janie. I had just flown in to New Olreans and joined some friends for dinner. It was a group of 10 and I …
Her Spirit
Today’s post comes from Catriona. She is a writer, mother and advocate. I first met her online, reading her blog and then in Boston at a family conference for Rett …
A different October
I am still in disbelief but I am ready to go ahead and put it out there, deep breath, here goes. I like October, I might even be loving it. …
More than 1,000 words
When Claire was diagnosed with Rett Syndrome we knew that she would loose skills. We didn’t know what and we didn’t know when. One of the things we did as …
Leaving Room
When Claire was 18 months old we took our first step into the adventure that would become living in Rettland by starting physical therapy. Before there were any blood tests, …
Enough
Living in Rettland is often very different, complicated and far from the reality that others experience. However, sometimes it so simple, it reduces life down to it’s core, where hard …