October is Rett Syndrome Awareness Month
It is Rett Syndrome Awareness Month and this holds a very special place in my heart. Last October I received a call from one of Claire’s doctors, the test for …
A busy weekend
We had yet another rewarding and exhausting weekend. Saturday we headed up to Oakland for the natural history study. It was fun to see the doctors again and it was …
It’s good to be home
We have made the journey home and it is good to be back. This was our first time driving from AZ to home as a family so we thought that …
Having fun in AZ
We have been here a few days now, long enough for the dust to settle, and we are having a great time. It is such a blessing to see Claire …
Did I mention I love it here?
I don’t know if it technically counts as an Indian summer, but it feels like it. As we left the house it was 90 degrees outside and some of the …
Over the hill and through the woods..
…off to Stanford we went. Today we had the opportunity to go see our doctor in the Behavior & Development Unit at Lucile Packard Children’s Hospital (part of Stanford hospital). …
Super Claire!!!!!!!!
After having a week off to goof around, Claire was back to work today. I know that I shouldn’t be surprised, but she keeps doing more and more, always surprising …