Living in Rettland is often very different, complicated and far from the reality that others experience. However, sometimes it so simple, it reduces life down to it’s core, where hard …
Change
When I was a kid there was no awareness of other kids with disabilities. Wheel chairs were for old people. There were no classrooms for kids with special needs. Now …
They get it!
One of the less fun things that we get to do here in Rettland is have an annual IEP. Once a year, right before Claire’s birthday I get to sit …
Today’s Reality: Physical Therapy
Physical therapy is a very big part of our living in Rettland. Claire does pt with a horse once a week and twice a week she works with the lovely …
The Time is Now
There is a bit of a conundrum in Rettland. We have all worked hard to raise money for research. Now that there are trials, they aren’t full because participation in …
Ready to Admit It
It is no secret that I was dragged into Rettland kicking and screaming. At first I tried to focus on Claire for Claire and pretended that she didn’t have Rett Syndrome. …
The Love of Another
The last few days have been incredibly challenging. Claire had two days of seizures and on the third day a cold that kept her from breathing through her nose, something …