One of the less fun things that we get to do here in Rettland is have an annual IEP. Once a year, right before Claire’s birthday I get to sit …
Today’s Reality: Physical Therapy
Physical therapy is a very big part of our living in Rettland. Claire does pt with a horse once a week and twice a week she works with the lovely …
Ready to Admit It
It is no secret that I was dragged into Rettland kicking and screaming. At first I tried to focus on Claire for Claire and pretended that she didn’t have Rett Syndrome. …
Appointments (and dissapointments)
It’s been a big few days and again I find myself with few words. I met my friend Catriona in real life in Boston, at a conference for Rett Syndrome. …
Same but Not
One of the things that continues to take my breath away in how varied the landscape is in Rettland. By that I mean that the children that are affected by …
Sisters
We will kick off the month with what I think is one of the more profound voices of Rett Syndrome, Chloe, she speaks for her sister. This is from a …
October
I like to say that I hate October but the truth of the matter is that I just hate Rett Syndrome, a lot. October is Rett Syndrome awareness month. It …