I am still in disbelief but I am ready to go ahead and put it out there, deep breath, here goes. I like October, I might even be loving it. …
Dear Claire,
I can’t believe that you are turning 8 today. It seems like just yesterday that we were driving to the hospital, excited to hold you in our arms. I had …
Lessons from my Mom
Mom’s teach lots of things. Somehow I ended up a relatively functional adult and my mom had a lot to do with that. Still, the most important things that she …
More than 1,000 words
When Claire was diagnosed with Rett Syndrome we knew that she would loose skills. We didn’t know what and we didn’t know when. One of the things we did as …
Leaving Room
When Claire was 18 months old we took our first step into the adventure that would become living in Rettland by starting physical therapy. Before there were any blood tests, …
Enough
Living in Rettland is often very different, complicated and far from the reality that others experience. However, sometimes it so simple, it reduces life down to it’s core, where hard …
Change
When I was a kid there was no awareness of other kids with disabilities. Wheel chairs were for old people. There were no classrooms for kids with special needs. Now …