When Claire was 18 months old we took our first step into the adventure that would become living in Rettland by starting physical therapy. Before there were any blood tests, …
Enough
Living in Rettland is often very different, complicated and far from the reality that others experience. However, sometimes it so simple, it reduces life down to it’s core, where hard …
Change
When I was a kid there was no awareness of other kids with disabilities. Wheel chairs were for old people. There were no classrooms for kids with special needs. Now …
They get it!
One of the less fun things that we get to do here in Rettland is have an annual IEP. Once a year, right before Claire’s birthday I get to sit …
Today’s Reality: Physical Therapy
Physical therapy is a very big part of our living in Rettland. Claire does pt with a horse once a week and twice a week she works with the lovely …
The Time is Now
There is a bit of a conundrum in Rettland. We have all worked hard to raise money for research. Now that there are trials, they aren’t full because participation in …
Ready to Admit It
It is no secret that I was dragged into Rettland kicking and screaming. At first I tried to focus on Claire for Claire and pretended that she didn’t have Rett Syndrome. …