Things are still going pretty well. Claire’s been good. We found the sinus infection and got the antibiotics going before the fever and seizures began their vicious cycle. I’ve been …
Boston Awesome
I am sitting on an airplane headed home again and overwhelmed by just how awesome the last few days of our trip went. Our time away at Cape Cod was …
The Best and Worst
Days like this remind me of A Tale of Two Cities. “It was the best of times, it was the worst of times.” Yesterday I woke and checked my inbox …
A different October
I am still in disbelief but I am ready to go ahead and put it out there, deep breath, here goes. I like October, I might even be loving it. …
Dear Claire,
I can’t believe that you are turning 8 today. It seems like just yesterday that we were driving to the hospital, excited to hold you in our arms. I had …
Lessons from my Mom
Mom’s teach lots of things. Somehow I ended up a relatively functional adult and my mom had a lot to do with that. Still, the most important things that she …
More than 1,000 words
When Claire was diagnosed with Rett Syndrome we knew that she would loose skills. We didn’t know what and we didn’t know when. One of the things we did as …