It’s hard to know where to start when it feels so much like the end. Since mid March we have been to Boston 4 times. We’ve spent 21 nights in …
And Done!
It’s been about 36 hours since my last post and I am exactly where I was when I wrote that, 35,000 feet above the middle of our country. A lot …
A different October
I am still in disbelief but I am ready to go ahead and put it out there, deep breath, here goes. I like October, I might even be loving it. …
Dear Claire,
I can’t believe that you are turning 8 today. It seems like just yesterday that we were driving to the hospital, excited to hold you in our arms. I had …
Lessons from my Mom
Mom’s teach lots of things. Somehow I ended up a relatively functional adult and my mom had a lot to do with that. Still, the most important things that she …
More than 1,000 words
When Claire was diagnosed with Rett Syndrome we knew that she would loose skills. We didn’t know what and we didn’t know when. One of the things we did as …
Leaving Room
When Claire was 18 months old we took our first step into the adventure that would become living in Rettland by starting physical therapy. Before there were any blood tests, …