I really wanted to beat Rett syndrome. I wanted to out plan it. I didn’t realize it at the start but I feel confident saying that as I look back. …
Hope
You know that week when it’s all so much more than you can handle that you just shut down, I’m having that week. Participating in the trial is taking it’s …
No Safe Adventures
Can’t believe that I am already sitting here, on the plane, on the last leg of our 10 day adventure to Boston. After all, time flies when you are having …
Numb
We have been away for almost a week. There have been ups and downs. At the start things were fairly smooth. With time, they got rougher. Claire’s eagerness to be …
Happy
It feels slightly ironic. As I sit in our hotel room while Claire sleeps off a seizure I learned that today is the official International Day of Happiness. There is …
No Doubt
It occurred to me this weekend that it was exactly 8 years since we moved to the Santa Cruz area. I had been very ill and living over 700 miles …
Normal
I think I might be giving up on holidays this year, I just don’t have it in me to do anything more than our normal. Today the reality really sank …