It’s been a crazy to think back over the whole arch as we finish the final time point for this trial. I was taken back to when we were first …
Boston Doesn’t Suck but Rett Syndrome Does
I really wanted to beat Rett syndrome. I wanted to out plan it. I didn’t realize it at the start but I feel confident saying that as I look back. …
What Makes it Bearable
I’ve got so much that I want to say about this trip but I just can’t wrap my brain around the words yet. It has been very emotional and I …
Well Done Captain Awesome
Things have been fairly eventful and I’ve wanted to write but haven’t had the time and energy in the same moment. Eventually I will get back to stories from our …
No Safe Adventures
Can’t believe that I am already sitting here, on the plane, on the last leg of our 10 day adventure to Boston. After all, time flies when you are having …
Numb
We have been away for almost a week. There have been ups and downs. At the start things were fairly smooth. With time, they got rougher. Claire’s eagerness to be …
Lucky
Funniest thing. For the second night in a row, Captain Awesome and I were sitting on the floor splitting an appetizer and a beer from the hotel restaurant for dinner …