Yesterday we had a fairly routine visit to Katie’s Clinic for Rett Syndrome. We met with multiple specialist who all agreed that we were doing everything correctly that we could …
Change, Crazy and Awesome
It’s a well known fact, change is hard. Right now we are on the verge of some major changes. When Claire was 2 we had no control. The changes involved …
Not like this
We’ve been a long way from how things were supposed to be for a while now. Still sometimes it surprises me with a gut punch so hard it takes my …
The Idea of Beauty
It is crazy to think that 10 weeks ago I was in the same hotel, my heart breaking as Claire was sick and seizures were wrecking her while Chloe blissfully …
Escaping Rettland
Last week we started the project of tailoring our new home to our needs. There was lots of destruction. All the flooring was removed along with the fireplace and two …
Growing up
It sounds obvious when it’s said out loud. Growing up is hard and growing up in Rettland doesn’t make it easier. Much like the other difficult seasons, this one crept …
Choosing Goodness
Monday I got a call that Claire’s new activity chair was being delivered this week. I expected to be relieved that this was finally coming together but it caught me …