Monday’s have changed for us. After years of driving an hour each way, every Monday, for 30 minutes of PT with a horse, I am home, resting and it’s weird. …
The Middle of Somewhere
I really thought that by now I’d be doing not much else beyond enjoying life and the stage we are in right now. After all, we finished the trial, we …
We Get By With A Little Help
It’s been a long week, month, year (or two). When I hear people talk about our life it sounds exhausting. It would be completely understandable for me (or any parent …
Living in Rettland
One of the things that still takes me by surprise are the giant waves of emotion that come out of nowhere. It’s often the littlest things like two sisters playing …
Done
Today, in the middle of the afternoon, huddled in the coolest dark corner of our home on an insanely hot day, we officially completed the IGF-1 trial. It was just …
A year later
A year ago I was sitting in a hotel room alone with Claire, crying my eyes out. Jared and Chloe had flown home so she could be at school for …
Our Little Boston Miracle
I still can’t believe that in a few short weeks, our little family will pack back up and head to Boston for our final trip of the IGF-1 clinical trial. …