It was three years ago today that I did the single scariest thing in my life so far. Claire and I flew to Boston for 24 hours to apply to …
When Wild Meets Normal
It’s been a while since I’ve had the time and mental stability to write. The funniest thing happened in the weeks after my last post, normal met wild and I …
Growing Slow
I’m not sure what exactly happened but I just found out it is January 3, 2015. The last two weeks of December were the same as the rest of the …
Adventure Style
As wonderful as October was, I was so happy to have it over. I wanted to hide under a rock and attempt to process all of the ups and downs, …
What I Am Giving
I’ve never pretended to be a sane person, that in itself would be ludicrous. However, when I found out last September that the two clinical trials for Rett Syndrome were …
Suffering Well
It’s such a hard question, How are you? It’s meant to connect but so often becomes isolating when you can’t muster up an authentic answer. I’ve given an assortment of …
The Middle
I have yet again reached delusional levels of fatigue. We knew that 2014 was going to be big and 3/4 of the way through it, I can tell you life …