Funniest thing. For the second night in a row, Captain Awesome and I were sitting on the floor splitting an appetizer and a beer from the hotel restaurant for dinner …
Suffering Well
It’s such a hard question, How are you? It’s meant to connect but so often becomes isolating when you can’t muster up an authentic answer. I’ve given an assortment of …
The Hangover
I’ve been home for almost a week and I am still trying to come down from the awesomeness high that was the last two weeks, three months better part of …
The Seriousness of Hope
Just after I published my last post, Claire gave us a good scare. Things change so quickly here in Rettland. This round, as fast as things went down they also …
Further down the road
It’s hard to know where to start this story. Thanksgiving was fantastic. We were taken in to a friends family and it was wonderful, the best Thanksgiving in Claire’s life, …
Ready to Admit It
It is no secret that I was dragged into Rettland kicking and screaming. At first I tried to focus on Claire for Claire and pretended that she didn’t have Rett Syndrome. …
The Irony of Christmas
Today was one of those days, you know, those days that you feel too close to loosing the will. It wasn’t anything too big, a few crazy teething poop diaper …