I will never forget when I met Janie. I had just flown in to New Olreans and joined some friends for dinner. It was a group of 10 and I …
A different October
I am still in disbelief but I am ready to go ahead and put it out there, deep breath, here goes. I like October, I might even be loving it. …
More than 1,000 words
When Claire was diagnosed with Rett Syndrome we knew that she would loose skills. We didn’t know what and we didn’t know when. One of the things we did as …
Change
When I was a kid there was no awareness of other kids with disabilities. Wheel chairs were for old people. There were no classrooms for kids with special needs. Now …
Ready to Admit It
It is no secret that I was dragged into Rettland kicking and screaming. At first I tried to focus on Claire for Claire and pretended that she didn’t have Rett Syndrome. …
Same but Not
One of the things that continues to take my breath away in how varied the landscape is in Rettland. By that I mean that the children that are affected by …
The other side of Rettland
Part of the joy of being in Rettland is the amazing people you meet while here. Almost a year and a half ago I had the honor of meeting Joseph …