It’s been a long few days. Claire has been up and down and up and down. The days have been filled with seizures. Chloe is getting good at bringing the …
So very normal
My heart is pounding. Maybe it’s the gratuitous amounts of caffeine coursing through my veins. Perhaps it is from carrying Claire’s limp body all of the way across campus to …
Silent Angel…Not So Much!
I am sure that most of my rett friend readers have heard the term “silent angel” in reference to the girls that have been diagnosed with Rett syndrome. I imagine …
Enough?
How much is enough? How many hours of PT and OT? How much respit? How much equipment? When we got the diagnosis this in one of the things that was …
This much I know, it wasn’t boring
I just looked at the calendar and noticed that on Saturday, it will be a whole new year, wow, that was fast! I have to say that all in all, …
Field Trip!
Since Claire has started kindergarten, she has 35% of her day in inclusion with a mainstream kindergarten class. Last week they went to the children’s discovery museum and Claire got …
LPCH, where everyone’s the same
Yesterday was a pretty routine day for us, with the exception of a little trip over the hill to LPCH for Claire to see the eye doctor. Jared decided to …