Balance is hard. I believe it always will be. Right now part of my struggle is living in a place that fully accepts and embraces Claire for who she is …
Hope
You know that week when it’s all so much more than you can handle that you just shut down, I’m having that week. Participating in the trial is taking it’s …
Little Things
Of all of the things that are hard about life in Rettland, recently it’s the little ones that have really gotten to me. Not just the million little details like …
Thriving
It is weird to adjust to life spent thriving and I am certainly not there yet. We spent many years coping, surviving, barely making it through each day. I am …
It’s complicated
Things are still going pretty well. Claire’s been good. We found the sinus infection and got the antibiotics going before the fever and seizures began their vicious cycle. I’ve been …
Off Guard
It caught me off guard. I had been so wrapped up in keeping Claire alive that I had completely forgotten about the trial. Friday we raced around to unexpected heart …
Two Days In
As I sit down tonight I struggle to say much more than we made it through the first two days. It has been exhausting. Yesterday was cold and blowing ice …