You know that week when it’s all so much more than you can handle that you just shut down, I’m having that week. Participating in the trial is taking it’s …
Thriving
It is weird to adjust to life spent thriving and I am certainly not there yet. We spent many years coping, surviving, barely making it through each day. I am …
Make a Wish
I assume a lot of 4 year olds forage for pennies to toss into a fountain and make wishes. Chloe does. She recently found a collection that she had forgotten …
Two Days In
As I sit down tonight I struggle to say much more than we made it through the first two days. It has been exhausting. Yesterday was cold and blowing ice …
Sisters
We will kick off the month with what I think is one of the more profound voices of Rett Syndrome, Chloe, she speaks for her sister. This is from a …
Be Gentle
I was trying to make dinner, the raviolis were just about to come out of the water when it hit. Claire got stiff and needed oxygen to help fight off …
Our Playground
I have to admit that it isn’t just because of Rett that I don’t like playgrounds. Even before there was anything special or different about us, they just weren’t our …