When I was a kid there was no awareness of other kids with disabilities. Wheel chairs were for old people. There were no classrooms for kids with special needs. Now …
They get it!
One of the less fun things that we get to do here in Rettland is have an annual IEP. Once a year, right before Claire’s birthday I get to sit …
Today’s Reality: Physical Therapy
Physical therapy is a very big part of our living in Rettland. Claire does pt with a horse once a week and twice a week she works with the lovely …
Ready to Admit It
It is no secret that I was dragged into Rettland kicking and screaming. At first I tried to focus on Claire for Claire and pretended that she didn’t have Rett Syndrome. …
The Love of Another
The last few days have been incredibly challenging. Claire had two days of seizures and on the third day a cold that kept her from breathing through her nose, something …
Sisters
We will kick off the month with what I think is one of the more profound voices of Rett Syndrome, Chloe, she speaks for her sister. This is from a …
October
I like to say that I hate October but the truth of the matter is that I just hate Rett Syndrome, a lot. October is Rett Syndrome awareness month. It …