I love November. The weather, the focus on gratitude, it’s not October; so many things to love. I was ready to dial back, take care of myself and relax into …
Mise En Place
One of the most glorious things in my life happened this morning. Our sweet little energetic Chloe bounded out of bed early on a Saturday morning and offered her “sous …
Game Changer
It’s been a crazy to think back over the whole arch as we finish the final time point for this trial. I was taken back to when we were first …
Boston Doesn’t Suck but Rett Syndrome Does
I really wanted to beat Rett syndrome. I wanted to out plan it. I didn’t realize it at the start but I feel confident saying that as I look back. …
What Makes it Bearable
I’ve got so much that I want to say about this trip but I just can’t wrap my brain around the words yet. It has been very emotional and I …
Balance
Balance is hard. I believe it always will be. Right now part of my struggle is living in a place that fully accepts and embraces Claire for who she is …
Good
It’s no secret that it’s been a very long few years for us, about 8 actually. Last night we were talking over past July’s and how trying many of them …