Several victories


Today was a day filled with small victories. Together they add up to make the most amazing of days. To start, Claire seems to sleep in the car if I play Social Distortion. To add to this victory, Jared now enjoys listening to it, so it works well. We drove down to Monterey today to beat the heat. Clarie enjoyed her sandwich in a park at a beach. It was warm, but not hot, she loves to watch people on their bicycles, it was brilliant. We proceeded to the Monterey Bay Aquarium. Lightening was flashing around us as we walked in, I thought that surely we would be stuck, but no, so I consider it another victory. Claire had so much fun. She stood at the bottom on a big glass wall in awe at the hammerhead sharks and tuna above us. We went to several different exhibits and she soaked it all in. For the first time, looking more at the marine life than the people. She stood shoulder to shoulder with other little ones, Jared picking up a starfish and some kelp for her to touch. Then, was the best victory of the day, communication. We have been working on including icons in Claire’s life to help her to communicate. When we left the aquarium we asked Claire to make a choice for us. I help to icons in front of her, a car and a bowl of ice cream. I asked her if she wanted to get in the car and go home or if she wanted to go to Ghiradeli and get ice cream. I even put the ice cream icon in the harder position of the two. She looked at both she thought, she grinned, she picked ice cream. We immediately proceeded to stand in line and order a big fudge sundae. While we waited she sat and saw the others enjoying their ice cream, the look of excitement and anticipation was beautiful. We then went to the car, put Social Distortion on and back to sleep it was for the little angle. I have been really trying to wrap my head around how to communicate practically with Claire. A smile and a frown are cute, but very limiting. I find myself at the end of it all, so grateful. Grateful that Claire has Rett Syndrome and that I get to see this whole other version of the world that we live in, grateful that we live in Santa Cruz and even when it’s hot we can escape, grateful for the many victories that filled today. This is my first crack at blogging, so bear with me.

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